Company Name: Kabuki Syndrome Foundation (KSF)
Company Summary: The Kabuki Syndrome Foundation is dedicated to supporting individuals affected by Kabuki syndrome, a rare genetic disorder. With a mission to advocate for these individuals, KSF is committed to finding impactful treatments and driving patient-centred research. Through global fundraising efforts and collaborations, KSF is a beacon of hope in the rare disease community.
What Bubbly Did: Understanding the critical role of an online presence, Bubbly Consulting was entrusted with creating a new website for KSF. The aim was to position KSF as a frontrunner in the rare disease sector, attracting the attention of patients and their families, pharmaceutical entities, and researchers. Bubbly designed and developed a multifaceted website catering to various audience segments. The site provided comprehensive resources on Kabuki syndrome, highlighted ongoing research, and served as a platform to engage new researchers and investors. A key aspect of this project was the seamless integration of the website with KSF’s existing CRM and donation platforms, ensuring a cohesive user experience.
Results: The new website crafted by Bubbly Consulting has set a new standard in the rare disease space. Its professional, informative, and compassionate design has significantly enhanced KSF’s online presence. The website has successfully increased engagement from individuals with Kabuki syndrome and their families. This is evidenced by a marked increase in contact form submissions from potential collaborators and a noticeable uptick in monetary donations, furthering KSF’s mission.
Services Provided by Bubbly:
- Website Design and Development
- Website Management
- Digital Asset Creation
- Copywriting and Storytelling